Monday, January 22, 2018

Not in time…again

For reasons of patient confidentiality, especially because she was a child, I cannot tell you her real name but — I’ll call her Katie. For a long time, Katie had been fighting neuroblastoma, one of the deadliest of childhood cancers. She died last week at the age of 13.

I got to know Katie when we were working on a national campaign around neuroblastoma and she became one of our ambassadors. She had a calm and a grace about her; she was, as another friend in the neuroblastoma world called her, an old soul.

Most neuroblastoma kids are old souls. Whether it’s the experience of having to fight so hard for your life that does it or something else, I’ll never know, but i do know that Katie radiated something that made me think she’d be the one to beat it. A cure would come in time or her body would suddenly stop trying to do her in.

I’ve been down that road of hope before with other families, each hoping their child would make it. One day, one of them will and others will follow. But not today. Not in time for Katie.

Katie, you brought hope with you wherever you went.You touched many in your brief time among us. And the world was better because you were here.

Rest well, sweet gal, free of pain at last. Rest well.

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